Cystic fibrosis - get it off your chest

Firstly I would like to thank you for taking some of your time to visit my blog.  I’m Eleanor and trying to help young people with Cystic Fibrosis is something I feel very strongly about. When you have read my blog I hope you will feel more informed about cystic fibrosis and what the cystic fibrosis trust does.

I have three main aims for my blog, these are;

• To raise awareness of the charity and what they do
• To encourage you to support my foundation- The cystic Fibrosis trust.
• To try and get you to change your behaviour towards the trust.

So what is the Cystic fibrosis trust?

The trust is an organisation that was established in 1955 by a group of parents who were dedicated to trying to find a cure for their children who they had to watch slowly dying. Since then drastic developments have been made and they are moving ever-closer to developing a cure. To find out more about the Cystic fibrosis trust please visit their website: http://www.cff.org/

What is cystic fibrosis?

Cystic fibrosis is a genetic disorder, in which the body produces large amounts of sticky mucus that clogs up the lungs and the pancreas. It leads to chronic lung infections and loss of lung function. This may leave the person unable to breathe. Cystic fibrosis is the UK’s most common inherited life-threatening disease. Every week at least ten children under 12 die of cystic fibrosis.

Zoe Ose is an adorable little girl with a captivating smile and big, beautiful eyes that are bursting with the passion, joy and innocence of a child who is just beginning to discover the wonder of the world around her. Zoe is also a little girl living with cystic fibrosis (CF), a disease that complicates an otherwise carefree childhood and threatens to rob her of the very life that she so passionately enjoys. When she was first diagnosed, Zoe had a feeding tube in her nose that was used to feed high-calorie formula directly in to her stomach and help her grow quickly. Scott and Jada recall that they rarely slept in the three months that Zoe had the tube feedings — for fear that the tube might come out or get tangled around Zoe as she slept. They stayed close by her all night to make sure that Zoe got every precious drop of the nutrition that she needed. Now thanks to Cystic Fibrosis Trust, Zoe is living a fun-flied life that she craved so much.

However like any organisation they are not able to carry on with their vital research without donations, even the smallest amount can make an enormous difference to the progress of this project.  We should be donating if we can, if you were given the chance to save a life would you take it? This is your chance!

So please consider supporting the trust, because if you don’t care…who will? It’s not just the trust who needs your donations; it’s the thousands of people who die from cystic fibrosis every year.

Thank you so much again for reading my blog. Please now take some time to post me a response with your thoughts on my blog and about CF. It would be particularly great if you could write some words in response to the following questions. Further details about the ideas below are available on their website; http://www.cff.org/

1. Had you heard about the disease and the problems it causes?
2. Do you now feel more informed about the problems faced by those with cystic fibrosis?
3. Would you now be prepared to do any of the following to help improve the lives of people with cystic fibrosis…?

• Make a donation to The cystic fibrosis trust
• Start or join a fund raising campaign
• Volunteer  to help make a difference to people’s lives
• Support the cystic fibrosis foundation every time you use eBay
• Tell your family and friends about Cystic fibrosis trust and get them to help out in any of the ways above?

If you do post a response, please can you tell me where you come from i.e. country or home town.

Many thanks
Eleanor